One Sick Little Boy

The last 72 hours have been out of control. At 7:32 pm on November 2nd our little boy was born. It was a miracle that he was born alive. His umbilical cord was wrapped around his neck and in a knot. When we were able to see him his hand and feet were VERY purple but other than that he looked perfect. At that moment Ryan and I had never been happier. We spent some time with him but since we were not allowed to stay at the hospital we went to stay with a friend in Salem.

We got up pretty early the next morning very excited to see our son. We we got there we had some special time with him. We noticed that he was spitting up some light green stuff and it just looked like he did not feel well. The birth mother wanted to spend some time with him so we went to lunch. When we got back to the hospital he still did not look like he was feeling OK and was gagging a lot. We made sure to tell the nurses that he had not had a bowel movement since he was born. They were not especially alarmed but said that they would keep a watch on him. Again the birth mother wanted to spend some time with him so we left hoping to get a good nights sleep and be able to bring our son home the next day.

At 11pm we got a phone call from the hospital telling us that Landon was not doing so well. So we immediately went back to the hospital. When we got there we were informed that they had a transport team on the way from Doernbechers Hospital and that they should be here in about 45 minutes. Tears immediately filled our eyes. We could not believe what was going on with our little boy. The PANDA Team arrived and transported him in an ambulance to Portland. We arrived about the same time as him. He was stable at this point but they wanted to run some more tests. Around 4am on Sunday we were told that he was going to need surgery and that would happen around 10am. We talked with the Doctors for a few minutes then headed home to get a few hours of sleep before Landon's surgery.

We arrived back at the hospital around 8:30am and found out they were going to do one last test before his surgery. It was a barium x-ray to see where the blockage was in his intestines. We were happy to see he had a blow out on the table and that some of the blockage had passed. Instead of a under developed portion of his intestines they found an excess of meconium near or around his colon. For a few short moments we were relieved. We headed to the cafeteria to get something to eat. Just as we finished eating we got the news that the excess meconium is most likely due to Cystic Fibrosis. OH MY, we could not believe what we were hearing. We thought that our boy was going to be OK just a few minutes before.

The birth mother was on her way to the hospital so we were asked to give her some time alone. We went home and tried to get some sleep. We returned to the hospital to see him one more time before the night was over. He was looking a little better but he still was not pooping.

Today is Monday and we could barely get out of bed. We still could not believe what was happening. Were we going to wake up and have this all be a nightmare? Is this really happening?

We got a phone call from one of Landon's nurses stating that there is a small possibility that he has Hirschsprung's Disease. He had a biopsy this afternoon to find out if that is the case. From what we have researched on our own that is a much better scenario than Cystic Fibrosis. The test results will take several days. In the mean time they are keeping an eye on him.

Around 8pm tonight Ryan and I went to the hospital to see Landon. He seemed to be a little uncomfortable but was able to rest. The nurse let us know that he had 3 poops today which is great news. We still have to wait for more test results to come back before we will know what is wrong with our little boy.

Unfortunately the adoption papers can not be completed until Landon is ready to go home. We are only able to see him when the birth mother is not around. Until further notice no family member or friends will be able to see him either. We are also not able to make any of the medical decisions for him until he is legally ours.

Right now we ask for prayers for Landon. He already means the world to us and we dream of the day we can bring him home with us. Thank you for all of you that have already been praying for our little boy. We believe in our hearts that God has a plan for him. God's glory and grace is awesome and we ask him to reveal his plan for Landon. We want to make sure that he gets the best care possible even if that means we have to let him go.

We will try to keep this updated as we know more.